NDIS Support & Care for people with Huntington’s disease

At Maple, we understand that Huntington’s disease affects everyone differently and that support needs often change over time. Our team provides personalised support that is tailored to the individual’s goals, abilities, routines, and stage of the condition, helping participants maintain independence, dignity, and quality of life wherever possible.

If you or your loved one has Huntington’s Disease, this can have a huge impact on many aspects of your life. With the right support, treatment, and provider, patients with Huntington’s Disease can live longer, happier lives and still participate in most daily activities before the disease progresses.

Yes. Maple has extensive experience supporting people with complex and high-support needs. As Huntington’s disease progresses, we can provide additional assistance with personal care, mobility, daily living activities, community access, and complex care supports to ensure participants continue receiving the right level of care.

Huntington’s disease affects more than the individual; it often impacts the entire family. We work closely with family members and carers to provide reliable support, clear communication, respite opportunities, and practical assistance that helps reduce pressure and create greater peace of mind.

Yes. Staying connected to others who understand the challenges of Huntington’s disease can be an important source of support for both participants and families. Maple can assist participants in accessing community programs, social activities, peer networks, and local Huntington’s disease support groups where available, helping people build meaningful connections and reduce social isolation.

Yes. Maple can support people living with Huntington’s disease to explore disability housing options, including Supported Independent Living (SIL) and other accommodation arrangements that align with their support needs and goals. As Huntington’s disease progresses, we work alongside participants, families, Support Coordinators, and healthcare professionals to identify housing solutions that provide the right balance of independence, safety, and ongoing support.

At Maple Community Services, we emphasise building strong relationships with each and every client that walks through our doors, providing them with the tools, supports, and access to services that will enable them to live independently.

Our priority is matching you with a like-minded Support Worker, someone who speaks your language, understands your goals, and is fully committed to ensuring you have all the necessary support you need to live your life to the fullest.

We are renowned for our extremely fast turnaround and approval times for Referrals. Please reach out to us for help with your SIL, Core Support, Plan Management, and Support Coordination Referral.

Our Support Workers for Huntington’s Disease have studied and trained diligently to understand and respond to the needs of people with Huntington’s Disease. You can feel confident and at ease with our Support Workers’ exceptional skills and qualifications. We pride ourselves on our years of experience providing Huntington’s Disease Support.

You’ll partner with a highly qualified Huntington’s Disease Specialist in Sydney, or across Australia, to improve your or your loved one’s life and enhance your overall well being. Our specialists have targeted expertise to provide assistance for people with Huntington’s Disease. Our Support Workers have training and experience in all aspects of Huntington’s Disease Support, from special programmes for young children to occupational supports for adults with Huntington’s Disease. We utilise specialised tools and technologies to work with children, including those who have speech disorders.

Huntington’s Disease is a rare genetic disorder that causes neurocognitive symptoms in varying degrees, but which progress over the course of the illness. It affects the central nervous system, including the brain and the spinal cord. 

Symptoms of this genetic condition include patients experiencing changes in their ability to think about and perform tasks and control their emotions, as well as difficulties with physical activity and uncontrolled movements.

Patients living with Huntington’s Disease can also experience complications of the illness including pneumonia, difficulty eating and swallowing, urinary tract infections, and bowel incontinence, but it nearly always progresses to dementia, and eventually death. Overall, the way the condition progresses can vary from person to person.

Treatment is usually started when patients begin to show symptoms and is aimed at reducing the impact of those symptoms on their function and well-being.

Huntington’s disease is an inherited genetic condition that is passed from parent to child. A person only needs to inherit one altered copy of the Huntington’s disease gene to develop the condition. If a parent has Huntington’s disease, each child has a 50% chance of inheriting the altered gene.

The genetic basis of Huntington’s disease is a mutation in the HTT gene, which provides instructions for producing a protein called huntingtin. This mutation causes an abnormal expansion of DNA within the gene, leading to changes in brain function and the gradual progression of symptoms associated with the condition.

The National Disability Insurance Scheme (NDIS) is available throughout Australia to anyone under the age of 65 who can demonstrate that they have a permanent intellectual, physical, sensory, cognitive, or psychosocial disability. The overall aim of the NDIS is to improve a person’s ability to function in all aspects of daily living and, if possible, gain more independence.

If you or your loved one has one or more of these disabilities as a result of Huntington’s Disease and needs professional support to manage their illness, you may be eligible for support under this scheme.

At Maple Community Services, we can walk you through the assessment process to see if you qualify for NDIS Huntington’s Disease support benefits. If you or your loved one meets the criteria, we will facilitate the process and have the full capacity to provide the comprehensive support services you need.

The NDIS funds several critical services for people who have disabilities resulting from Huntington’s Disease. These include personal care support, community access support, nutritional support, skills development, transport, household tasks, and behavioural support. Plan Management and Support Coordination Funding are almost always offered to NDIS Participants when they receive their plan. The types and amounts of funding available vary by the severity of the disability or dysfunction.

By partnering with Maple Community Services, together, we can help you identify your priorities and cater a support plan that provides the specific services you need, enabling you to lead a fulfilling life.

NDIS provides access to independent assessments for children and adults to determine their level of functioning. Rather than focusing on the diagnosis, these assessments are designed to determine the severity of you or your loved one’s disability and level of functioning in everyday life. Chat to one of our Huntington’s Disease Support Workers for more information.